Utah Birth Defect Newtork
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Striving to Prevent Birth Defects
Defect Information Defect Information Prevention Services Providers and Members About UBDN

List of Referral Clinics & Resources

Local General Resources:

Utah Birth Defect Network
http://www.health.utah.gov/birthdefect/

Parent to Parent/Utah Parent Center
2290 East 4500 South, Suite 110
Salt Lake City, Utah 84117-4428
801-272-1051
Toll-free 800-468-1160 voice or TDD
Espaņol 801-272-1067

Family to Family/ARC
455 East 200 South, Suite 202
Salt Lake City, Utah 84111
801-364-5060

Children with Special Health Care Needs
44 North Medical Drive
PO Box 144610
Salt Lake City, UT 84114-4610
Phone (801) 584-8284
Toll Free (800) 829-8200
http://health.utah.gov/cshcn

CSHCN provides services for children who have or are at risk for a chronic physical, developmental, behavioral, or emotional condition.

State Early Intervention Services
44 North Medical Drive
PO Box 144720
Salt Lake City, Utah 84114-4720
801-584-8226
800-961-4226
http://www.utahbabywatch.org

Statewide EI services are available for families of affected children from birth to three years of age that include child health assessment, service coordination among providers, occupational and physical therapy, speech and language therapy.

Developmental Disabilities, Inc. (DDI/Vantage)
535 East 4500 South, Suite D240
Salt Lake City, Utah 84107
Phone (801) 266-3939

Available Medical Services:

Division of Medical Genetics
Department of Pediatrics
University of Utah Health Sciences Center
2C412 School of Medicine
50 N. Medical Drive
Salt Lake City, Utah 84132
Phone (801) 581-8943

Children with Special Health Care Needs
44 North Medical Drive
PO Box 144610
Salt Lake City, UT 84114-4610
Phone (801) 584-8284
Toll Free (800) 829-8200
http://health.utah.gov/cshcn

CSHCN provides services for children who have or are at risk for a chronic physical, developmental, behavioral, or emotional condition.

State Early Intervention Services
44 North Medical Drive
PO Box 144720
Salt Lake City, Utah 84114-4720
Phone (801) 584-8226
Toll Free (800) 961-4226
http://www.utahbabywatch.org

Statewide EI services are available for families of affected children from birth to three years of age that include child health assessment, service coordination among providers, occupational and physical therapy, speech and language therapy.

More Information:

SHARE Pregnancy and Infant Loss Support, Inc.
Phone (801) 272-5355
Toll Free (800) 821-6819
www.nationalshareoffice.com

The Compassionate Friends, Inc.
P.O. Box 3696
Oak Brook, Illinois 60522-3696
Phone (630) 990-0010
Toll Free (877) 969-0010
Fax (630) 990-0246
www.compassionatefriends.org

Bereaved Parents of the USA
National Office
Post Office Box 95
Park Forest, IL 60466
Phone (708) 748-7866
www.bereavedparentsusa.org

Available Services:

Cleft Lip and Cleft Palate

Cleft Palate and Craniofacial Clinic
Primary Children's Medical Center
100 N. Medical Drive
Salt Lake City, Utah 84113
Phone (801) 588-2787

Spina Bifida

Spina Bifida Clinic
Primary Children's Medical Center
100 N. Medical Drive
Salt Lake City, Utah 84113
801-588-3395

Congenital Heart Defects

Pediatric Cardiology
100 North Medical Drive, Suite 1500
Primary Children's Medical Center
Salt Lake City, Utah 84113

Down syndrome

Down Syndrome Clinic
Primary Children's Medical Center
100 N. Medical Drive
Salt Lake City, Utah 84113
Phone (801) 588-2712

Utah Down Syndrome Foundation
Salt Lake Chapter - Uptown Downs
Phone (801) 282-8151

Other

Division of Medical Genetics
Department of Pediatrics
University of Utah Health Sciences Center
2C412 School of Medicine
50 N. Medical Drive
Salt Lake City, Utah 84132
Phone (801) 581-8943

Children with Special Health Care Needs
44 North Medical Drive
PO Box 144610
Salt Lake City, UT 84114-4610
Phone (801) 584-8284
Toll Free (800) 829-8200
http://health.utah.gov/cshcn

CSHCN provides services for children who have or are at risk for a chronic physical, developmental, behavioral, or emotional condition.

State Early Intervention Services
44 North Medical Drive
PO Box 144720
Salt Lake City, Utah 84114-4720
Phone (801) 584-8226
Toll Free (800) 961-4226
http://www.utahbabywatch.org

Statewide EI services are available for families of affected children from birth to three years of age that include child health assessment, service coordination among providers, occupational and physical therapy, speech and language therapy.